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Title Graphic: "Statewide Independent Living Council of Georgia, Inc."
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Georgia SPIL

Attachment 1: Mission, Goals and Objectives

Mission

The Mission of the Statewide Independent Living Council of Georgia, Inc. is equal participation of people with disabilities within their communities. Therefore, the Council will bring about results in the following areas:

Goals and Objectives

The goals of the Georgia SILC are consistent with the areas listed above. For the most part, the goals and objectives listed below are a continuation of the ‘99-01 SPIL. The Council recognized that its previous plan was ambitious and would require long-range effort and commitment

Goal A: Increased Access to Transportation $20,000

Objectives

  1. Support the efforts of the CILs to increase federal funding for rural transportation.
  2. Support the efforts of the CILs to sustain and expand voucher transportation programs for rural areas.
  3. Support the efforts of the CILs to advocate for ADA compliance of public transit systems.
  4. Develop and sustain relationship with the Georgia Department of Transportation in order to offer a disability perspective in their planning efforts.

Methods:

Seek grant funding for CILs for advocacy and for transportation vouchers. Provide verbal and written testimony to Department of Transportation’s annual planning process. Identify transportation expert as potential board member.

Desired Outcomes:

At least one CIL secures voucher funding. At least 5 rural counties apply for Rural Transit or Disabled & Elderly funding. At least one urban transit system improves compliance with ADA.

Time Line:

These outcomes will be achieved by 9/30/04.

Goal B: Increase the availability of Home and Community-Based Services, e.g. personal assistance services. $50,000

Objectives:

  1. Participate in the Unlock the Waiting List! Campaign by serving on the steering committee, by serving as the fiscal agent for donated funds and by disseminating information to the IL Network, families, consumers and the general public.
  2. Provide fiscal agency for individuals and grassroots groups engaged in advocacy for Home and Community-Based Services.
  3. Monitor the Olmstead work group and Olmstead implementation.
  4. Support the efforts of CILs to outreach to people with disabilities in nursing homes.
  5. Support the efforts of CILs to assist people with transitioning from nursing homes to community living.
  6. Search for partners to secure funding for pilot projects in Home & Community-Based services especially for transition from nursing homes and for consumer-directed programs.

Methods:

Assist CILs in securing funding for outreach to people with disabilities in nursing homes, for advocacy and for transitioning people from nursing homes. Administer funding for Unlock the Waiting List! Campaign. Provide scholarships for people with disabilities to educational/advocacy events.

Desired Outcomes:

CILs will assist at least 30 people with transitioning from nursing homes. Home and Community-Based funding will increase each year.

Time Line

: These outcomes will be achieved by 9/30/04.

Goal C: Increase the Availability of Accessible/Affordable Housing $8,000

Objectives

  1. Support the efforts of grassroots organizations such as Concrete Change to promote basic access in housing by serving on work groups and providing financial management for grants secured by Concrete Change.
  2. Sustain the partnership with the Developmental Disabilities Council, the AARP and the state and national Home Builders Associations to implement a Seal of Approval program for basic access in new homes.
  3. Support the efforts of CILs to develop and sustain ongoing partnerships with local housing authorities, e.g. securing agreements of Housing Authorities to apply for new programs serving people with disabilities.
  4. Collaborate with the Developmental Disabilities Council, the Center for Housing Alternatives and the Department of Community Affairs to expand accessible, affordable housing for persons with disabilities.
  5. Advocate with Housing Authorities for the use of Section 8 voucher program for home ownership.
  6. Secure additional dollars so that the CILs can expand their home modification program.
  7. Support the efforts agencies that promote compliance with the Fair Housing Law.

Methods:

Assist Concrete Change with fund raising efforts. Serve on the steering committee for the Department of Community Affairs’ initiative to expand affordable/accessible housing. Serve on the steering committee for the Easy Living Home Seal of Approval program.

Desired Outcomes:

At least $30,000 additional funding for Concrete Change. At least 10 Georgia builders building with basic access. A more comprehensive state housing plan that identifies housing issues for the disability community.

Time Line:

These outcomes will be achieved by 9/30/04.

Goal D: Decrease Barriers to Employment $150,000

Objectives

  1. Support the efforts of CILs, Shepherd Center and others to offer benefits counseling and consumer awareness on work incentives.
  2. Strengthen and sustain and ongoing partnership with the Georgia Department of Labor and with the Georgia Vocational Rehabilitation Program.
  3. Advocate and assist in the development of the Medicaid Buy In program for workers with disabilities.
  4. Administer the National Service Corporation grant. The goals of this grant are (1) to increase participation of people with disabilities in the streams of service (AmeriCorps, VISTA, Retired Senior Volunteer Program, etc.) and (2) to increase the capacity of these programs to include people with disabilities.

Methods:

Serve on the Department of Community Health’s Task Advisory group on the Medicaid Buy In and development of the Personal Care Option. Provide learning opportunities at quarterly board/contractor meetings on the Benefits Counseling grants. Provide training to National Service Corporation sites and to people with disabilities on the opportunities for each to serve the other.

Desired Outcomes:

A Medicaid Buy In program that serves at least 100 Georgians. A 10% increase in the number of Georgians utilizing work incentives. A 10% increase in the number of National Service Programs recruiting within the disability community.

Time Line:

These outcomes will be achieved by 9/30/04.

Goal E: Improve the Quality of Education $5,000

Objectives

  1. Support the efforts of grassroots organizations such as G-CARE, the Georgia Coalition for Accountability and Results in Education, an organization working to improve the quality of education for students with disabilities.
  2. Collaborate with the Developmental Disabilities Council on their inclusive education projects.
  3. Support the efforts of advocates for better education for students with sensory disabilities.
  4. Advocate for all educational systems, including the university system, to provide textbooks in electronic and other alternate formats.

Methods:

Invite education advocates (e.g. G-CARE) to provide educational sessions at quarterly board/contractor meetings. Collect information from educational systems on their use of electronic/alternate format textbooks.

Desired Outcomes:

At least one CIL assisting local parents/students with the development of Individual Education Plans. At least 6 CIL staff/volunteers participating in local education improvement activity. An increase in the number of educational systems providing alternate format textbooks.

Time Line: These outcomes will be achieved by 9/30/04.

Goal F: Support and Empower Self-advocates $12,000

Objectives

  1. Assist self-advocacy groups by serving as the fiscal sponsor of grassroots advocacy projects.
  2. Conduct Voter Education/Research Projects.
  3. Provide scholarships to training events especially for youth and for emerging leaders with disabilities.
  4. Support the work of the CILs in leadership development activities.
  5. Support the work of the Disability Law and Policy Center (DLPC) in their efforts to enforce state and federal disability rights and access laws.

Methods:

Seek funding to produce Voter Guide for statewide elections. Assist CILs with research on CIL consumers who report that they are “not interested” in registering to vote. Provide scholarships to workshops, conferences, Youth Leadership Forum ,etc. Serve on the board of the DLPC.

Desired Outcomes:

A Voter Guide. A report giving reasons that CIL consumers are “not interested” in voting. At least 10 people with disabilities attending workshops, conferences, Youth Leadership Forum.

Time Line:

These outcomes will be achieved by 9/30/04.

Goal G: Improved Access to Health Care

Objectives

  1. Disseminate information on Access to Health Care and Health Insurance.
  2. Advocate for the development of health insurance programs or products for workers with disabilities.
  3. Monitor the Department of Community Health’s budget and policy initiatives especially regarding Home & Community Based Services, the Medicaid Buy In, managed care programs, etc.
  4. Monitor the development of the Healthcare Georgia, the Foundation established as a result of the Blue Cross/Blue Shield settlement with non-profit community.

Methods:

Attend DCH Board meetings. Provide CILs and board members with regular updates on DCH policy initiatives, health insurance products and budget initiatives. Secure and disseminate Foundation grant applications.

Desired Outcomes:

At least one new health insurance product. At least one Foundation grant to the IL Network.

Time Line:

These outcomes will be achieved by 9/30/04.

Goal H: Improved Access to Information

Objectives

  1. Support the CILs efforts to provide alternate formats, access to interpreters and access to electronic information.
  2. Support the CILs efforts to expand services to persons with sensory disabilities.
  3. Support the initiative of the Georgia Council for the Hearing Impaired to secure Mental Health services to persons who are Deaf or Hard of Hearing.
  4. Establish accessible web site for the SILC.

Methods:

Desired Outcomes:

Time Line:

These outcomes will be achieved by 9/30/04.

Goal I: Increased Access to Assistive Technology/Adaptive Equipment

Objectives

  1. Secure additional resources so that the CILs may expand their assistive technology/adaptive equipment programs and to provide more comprehensive training in the use it.
  2. Support Tools for Life in their effort to expand technology demonstration sites and access to assistive technology/adaptive equipment.
  3. Support the efforts of Tools for Life and the Georgia Association of Persons with Disabilities in to establish an affordable loan program for assistive technology/adaptive equipment.
  4. Provide consumers with information about the use of Social Security Work Incentives for the purchase of work-related assistive technology/adaptive equipment.
  5. Provide consumers with information about G-Trade, a free web source to buy or sell assistive technology/adaptive equipment.

Methods:

Provide letters of support and matching dollars for Tools for Life or GAPD grant applications. Continue seeking Foundation funding for AT/AE for the Centers.

Desired Outcomes:

At least $100,000 in new funding for AT/AE. Expanded services to CIL consumers.

Time Line:

These outcomes will be achieved by 9/30/04.

Goal J. Support the further development of the Statewide Independent Living Council of GA.

Objectives

  1. Provide training and skill development as needed for SILC staff.
  2. Pursue additional funding to meet the goals and objective of the SPIL.

Methods:

Provide travel funds for board members to training and development events. Continue seeking grant funding for SILC objectives.

Desired Outcomes:

An informed, competent board of directors. At least $100,000 in additional funding for SPIL goals and objectives.

Time Line:

These outcomes will be achieved by 9/30/04.

Goal K: Expand and Improve the CIL Network. See the Network of CILs below for details.

Objectives

  1. Explore introducing The Independent Living Act in the Georgia General Assembly in order to (a) create an understanding of the IL philosophy, (2) codify the definition of a Center for Independent Living and (3) bring about the recognition of the CIL network as a valuable community asset.
  2. Assist local consumer groups with educating their local legislative delegations on the benefits of funding a CIL in their community.
  3. Develop a Memorandum of Understanding (MOU) with the Division of Rehabilitation Services to assure that consumers are referred to the Centers for Independent Living when appropriate.
  4. Collaborate with the Tennessee SILC on clarifying the role of TRAC vis a vis services in Northwest Georgia. Consider the development of a CIL in Northwest Georgia.

Methods:

Meet with members of the General Assembly regarding the IL Act. Assist local programs with preparing fact sheets and with developing advocacy strategies and skills. Meet with VR Director on quarterly basis until MOU is developed and refined.

Desired Outcomes:

Legislation defining CILs and IL. New state dollars for locals CILs. A better working relationship between VR and IL. A CIL for Northwest Georgia that is located inside the state boundaries.

Desired Outcomes:

These outcomes will be achieved by 9/30/04.

Mandatory Area 1: Scope and Arrangement of IL Services

It is the policy of the DSU to provide most IL services through private, nonprofit, consumer-controlled organizations. Over the past five years, the Division of Rehabilitation Services, has transitioned all Title VII, Part B funded services to SILC management. The SILC, in turn, contracts with local consumer-controlled, non-profits to deliver direct IL services. In FY ’00, nine local IL programs delivered 3672 services to 868 people with Title VII, Part B funds (along with some state dollars). In addition, five Part C funded Centers for Independent Living served 1,288 Georgians with significant disabilities through the Part C program.

The Chapter 2 (Older Blind IL) services are administered and coordinated by the DSU. The DSU contracts with five local programs--including the CIL in Augusta—that provided 1,758 services to 466 older blind people in FY 2000. The Chapter 2 Programs future goals are to

  1. Increase training in self-advocacy for the elder blind and elder deaf-blind.
  2. Explore the addition of another contractor.
  3. Continue to improve outreach with Tools for Life’s computer recycling/training program
  4. Include representatives from the consumer organizations in the annual Project Directors’ meeting in Washington, D.C. and the twice yearly Georgia contractors meetings.
  5. Increase the customer satisfaction survey response rate by having the contractors send to Mississippi State the names of closed cases on a quarterly basis instead of yearly.

Even though both Title VII B and Chapter 2 services have expanded significantly, Title VII programs touch only a small fraction of people with significant disabilities. Assuming that the percentage of persons with severe disabilities is 9.9% (McNeil National Study, 1994-5), there are 810,459 Georgians in this category. Because of these enormous numbers, it is essential for people in the IL Network to advocate with the state systems that affect the lives of people with significant disabilities. It is for this reason that many of our goals and objectives include advocating for disability-friendly policy on the part of state departments such as Education, Transportation, Community Health, Human Resources, Community Affairs, Labor, etc.

Mandatory Area 2: Cooperation, Coordination and Working Relationships. (Section 14 in the Table of Contents Preprint of the SPIL)

The CILs and the SILC coordinate their efforts in a variety of ways. Most CILs attend the quarterly SILC board meetings. The SILC board has two CIL directors – one nominated by the CILs and an additional one. CILs are working collaboratively with one another and with the SILC in grant applications such as the National Service Corporation grant and the Social Security Benefits Counseling grants. Email lists have enhanced our communication with one another as well as with advocacy networks such as the Unlock the Waiting Lists! Campaign, ADAPT, GCARE, etc.

The SILC and the DSU work together by participating in one another’s Councils. The DSU has a representative on the SILC and the SILC director serves on the State Rehabilitation Council along with a member of the SILC board. In addition, the DSU coordinator of services for people with sensory disabilities includes CILs on her email list and invites CILs to training sessions.

In addition to coordinating with the DSU, the SILC and CILs work collaboratively with relevant state and local agencies. For example, DisAbility Link and Disability Connections partnered with the Shepherd Center in applying for a Benefits Counseling grant. In addition, BAIN and TRAC are partnering with Rehabilitation Services in a Benefits Counseling grant from the Social Security Administration. All the CILs joined with the SILC in applying for a National Service Corporation grant to include people with disabilities in stream of service programs. DisAbility Link is joining with the University of Georgia’s Institute on Human Development and Disability to apply for an advocacy project funded by the Developmental Disabilities Council.

The SILC and the DD Council are partners on several projects. The two largest projects are the Unlock the Waiting List! Campaign and access to affordable, accessible housing.

Mandatory Area 3: Outreach to Unserved and Underserved Populations and Minority Groups. (Section 10 in the Table of Contents Preprint of the SPIL)

It is safe to say that all of Georgia is underserved when one considers the pool of potential IL consumers. As stated earlier, there are more than 800,000 Georgians who report that they have “significant disabilities”. There are more than 400,000 non-institutionalized Georgians between the ages of 16 and 64 who report that they are “unable to work” an account of disability. Part B and C dollars along with the Chapter 2 program served 2,322 people—slightly less than .003% of those with significant disabilities! But out of the people who are served, the demographics (age, race, gender) of the CIL consumer approximates that of the Georgia population as indicated by the chart that follows.

SILC Consumer Georgia Population

Gender

SILC Consumers: 42.4% Male and 57.6% Female.
Georgia Population: 48.7% Male and 51.3% Female.

Ethnicity

SILC Consumers: 58.9% White, Georgia Population: 66.7% White
SILC Consumers: 36.9% African American, Georgia Population: 28.5% African American
SILC Consumers: 1.6% Asian American, Georgia Population: 2.0% Asian American
SILC Consumers: 2.3% Latino, Georgia Population: 2.9% Latino
SILC Consumers: 0.3% Native American, Georgia Population: 0.2% Native American

The types of disabilities served by CILs include

It appears as though persons with mobility limitations are over-represented although we do not have good data to show the proportion of people in each disability category. Out of the more than 800,000 Georgians who report significant disabilities, the percentage of those with hearing disabilities or cognitive disabilities is not known. Therefore, it is difficult to decide which disability category is “underserved”. Moreover, not all disability categories need IL services equally. Some disability groups, such as people with mental illness, have a recognized and developed service delivery system. (Even though many of these service delivery systems may be inadequate, at least there is a recognized service system!) Other disability groups, such as persons with brain injury or those with multiple disabilities (such as deafness combined with mental illness), there is virtually no service delivery system. The same is true for people with significant physical disabilities. Unless such a person has a clear vocational goal, there is no recognized service delivery system. As a result, it is all too common to encounter a young person with Cerebral Palsy in a nursing home. It is therefore, important for the CILs and the SILC to

Even though the SILC remains uncertain about what is meant by unserved and underserved, the CILs have established outreach goals as a part of their work plans.

Therefore, the SILC will support the efforts of the CILs to meet their goals, which include the following activities:

  1. Hiring a person who is fluent in ASL in order better serve the Deaf community.
  2. Providing services to more rural consumers.
  3. Providing services to institutionalized consumers.
  4. Partnering with self-advocates who have cognitive and sensory disabilities.
  5. Outreach to Latinos and other immigrants especially in Metro Atlanta and Northeast Georgia.

In order to enhance the perspective of people with sensory disabilities, the SILC will include as an ex officio, non-voting member, the DSU’s coordinator of blind, deaf and deaf-blind services.

The SILC includes a member of the Muskogee Tribe, a recent recipient of a Section 121 Rehabilitation grant for Native Americans with disabilities.

Objective I – Network of CILs. (Section 13 in the Table of Contents Preprint of the SPIL)

The Current Network

Georgia has four Title VII, Part C funded CILs in the following areas:
DisAbility Link serving 12 counties around Metro Atlanta
Walton Options for Independent Living serving 19 counties in East Georgia (Augusta)
Living Independence for Everyone serving 14 counties in Southeast Georgia (Savannah)
Disability Connections serving 11 counties in central Georgia (Macon)

In addition, the SILC contracts with Tri-State Resource & Advocacy Corporation, a CIL in Chattanooga, Tennessee to serve the 15 counties in Northwest Georgia. At some point over the past three years, three of these five CILs were on “at risk” status with RSA. But at the present time, all three programs have dramatically improved and appear to be stable, competent sources for IL services.

The SILC and state dollars also fund CILs in Bainbridge, Gainesville, Fort Oglethorpe, a satellite center in Warrenton as well as two home modification/adaptive equipment programs—one in Atlanta and one in Brunswick. The map in Appendix I provides a graphic of the current IL Network. A Text version is in Appendix II.

Beginning in FY ’02, there will be $277,708 in additional Part C funds to be distributed as follows:

Additional resources to Disability Link are for the purpose of serving consumers in the 14 County Gainesville region. Additional resources to Disability Connections are for the purpose of serving consumers in the 8 county area around Bainbridge. Additional resources allow Walton Options to serve 5 counties in the western part of the center's large, rural service area. The long-range plan is to develop fully operational CILs in each of these areas with the current CILs serving as mentors to the small but developing CILs in Gainesville, Bainbridge and Warrenton.

Not all of the programs the SILC funds are interested in developing into fully operational CILs. For example, FODAC in Metro Atlanta and BCDE in Southeast Georgia provide home modifications and adaptive equipment (FODAC and BCDE) or transportation (BCDE). Because these services are very needed, the SILC will continue to contract with programs that provide specific, tangible IL services. However, public education materials will clearly state that such programs are NOT Centers for Independent Living but rather service-specific IL programs that complement the work of the CILs.

There are currently two programs serving Northwest Georgia—TRAC and Bridges. TRAC has held a contract to provide services to Georgians since ’96 and Bridges came on line in ’01. The Northwest Georgia region is the second most populated region after Atlanta. With an estimated 60,000 people with significant disabilities, there is an abundance of work to be done. Moreover, the Bridges program is concentrating their work in particular areas—education advocacy for children, transportation development and assistive technology. In addition, the two programs are regularly coordinating their efforts. There is, however, potential for confusion. Over the next three years, the SILCs of Georgia and Tennessee will consider (1) asking TRAC to concentrate its efforts in Tennessee and (2) funding a CIL within Georgia’s borders.

The SILC and the CILs are considering changing the way current contracts are executed. At the present time, SILC contracts are for specific services for a specific number of people. This contracting method is problematic for the CILs and for the SILC in the following ways:

  1. The federally funded programs are required to report consumer demographics and specific services to two funding sources—RSA and the SILC. There is confusion about how information should be reported. If, for example, one person gets a home modification along with IL skills training, is that one person reported to both funding sources?
  2. Another problem for the CILs is the difficulty they have with developing new funding for general operations. Many of the grants for which CILs apply are for particular items or projects but not for overhead. Therefore, how does the CIL support the increased overhead costs such as office space and telephone for project staff or audit costs?
  3. With only two office staff, the SILC has increased the number of contracts to be developed, managed and monitored. (There were 4 contracts in ’96 and 11 by the beginning of ’01). As more CILs are developed, the capacity for this function is stretched. If the SILC moves from specific to general contracts, the management /monitoring becomes less time-intensive. Since there are still areas of the state with no CIL, it is important to invest time and energy into new CIL development.

If the contracts with CILs are changed to allow funding for general operations, this contracting method will be used only for those programs that are Part C funded and therefore, required to complete an Annual Report to the Rehabilitation Services Administration (referred to as “the 704 Report”). Programs that are Part B and/or state funded will continue monthly demographic and service statistics that the SILC will compile for its annual 704 Report.

The Future Network

As previously stated, the goal for the Part B funded programs in Gainesville, Bainbridge and Warrenton is to develop these programs into fully functional, free-standing CILs. It is our intent to accomplish this task during the next three years.

In addition, the SILC will continue the process of CIL development by annually offering mini-grants of $3000 to assist consumer organizations with incorporation costs, securing their non-profit status and conducting study tours to learn about CIL operations. Depending on funding, the SILC may continue offering challenge grants of up to $40,000 for those programs that successfully secure local in-kind or cash investments. The areas of the state that are targeted for CIL development are Columbus, Newnan, Albany, Athens, Valdosta and Dublin. These areas are listed in order of priority based on the most to the least populated.

The SILC and the CILs will continue to work for increased funding in the following ways:

  1. Advocating for increases in Title VII, Part C.
  2. Assisting local CILs with advocating for state dollars as accomplished by Walton Options, Disability Connections and BAIN.
  3. Submitting Foundation Proposals. At the present time, the SILC has submitted 33 proposals totaling more $400,000 dollars.
  4. Submitting grants to assist with SPIL goals and objectives.
  5. Offering training and technical assistance to local programs when requested.

Even with all these approaches, the community capacity to develop a CIL may or may not exist. Developing a CIL requires interested, focused and skilled people with disabilities. The SILC will continue to search for, and offer learning opportunities to, any consumer group requesting its assistance.


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